Could use a prayer for my brother.

[Broncojohnny]

Damn I was thinking that was a one time thing. Good luck to your bro.

[Leah]

We're definitely seeking answers as epilepsy doesn't run in my family. The first time epilepsy appeared in our family from the past 3 generations was with my nephew who's autistic. From what I understand, epilepsy appears more with autistic children.

Children with autism. Just sayin'.

[motoman]

Will say a prayer for your brother. He needs a brain MRI quick to see what's going on. Anti-seizure med (Keppra? Lyrica?, etc.) just blocks the symptoms and doesn't do anything to fix the problem.

For whatever reason, the earliest his neurosurgeon could get a MRI scheduled was sometime in May. I have no clue why he's having to wait so long, but he is going in for an EEG with this new doctor next week.

[quikag]

For whatever reason, the earliest his neurosurgeon could get a MRI scheduled was sometime in May. I have no clue why he's having to wait so long, but he is going in for an EEG with this new doctor next week.

There is something wrong with the MRI issue. What kind of insurance does your brother have? You can get an MRI within a day or two if needed. Same day, if it's an emergency.

My wife has a brain tumor and we work with UT Southwestern and Baylor. I'd HIGHLY recommend talking to Dr. Christopher Madden at UTSW or Dr. David Barnett (chief of neurosurgery at Baylor-Dallas). If your neurosurgeon can't get an MRI scheduled until May, you need to find another neurosurgeon. That is not right OR I don't have all the facts.

[motoman]

There is something wrong with the MRI issue. What kind of insurance does your brother have? You can get an MRI within a day or two if needed. Same day, if it's an emergency.

My wife has a brain tumor and we work with UT Southwestern and Baylor. I'd HIGHLY recommend talking to Dr. Christopher Madden at UTSW or Dr. David Barnett (chief of neurosurgery at Baylor-Dallas). If your neurosurgeon can't get an MRI scheduled until May, you need to find another neurosurgeon. That is not right OR I don't have all the facts.

I misunderstood what he was saying, he hasn't seen the neurosurgeon yet, he's got a new neurologist he just went to and really likes. His neurologist is at UTSW (Dr. Modur) and there is a radiologist at parkland who is also on the neurology team at UTSW. His neurologist wanted him to go there so that radiologist could read the MRI, but parkland is busier than other places. He's trying to get one scheduled sooner.

[quikag]

Yeah, an MRI can be scheduled within the week and I would hope the neurologist would see the benefit of possibly having another radiologist read the MRI to get your brother in two months sooner! I would use the Zale-Lipshy radiology department for the MRI if possible. Good luck!

[motoman]

Yeah, an MRI can be scheduled within the week and I would hope the neurologist would see the benefit of possibly having another radiologist read the MRI to get your brother in two months sooner! I would use the Zale-Lipshy radiology department for the MRI if possible. Good luck!

I'm chatting my brother online as I've been replying to this thread and he said Dr. Barnett did the surgery for a close friend of ours. He may be looking into getting an appointment with him.

[quikag]

Dr. Barnett is one of the best neurosurgeons period. My wife loves Dr. Madden as well at UTSW FWIW.

Depending on what is causing his seizures, time can be a critical factor to fixing the problem before it's too late.

[krazy kris]

prayers sent,
I had a seizure out of the blue back in 09 and it turned out to be a vascular legion the size of a lime I was at Harris Methodist in downtown fort worth. I still have problems with my fine motor skills and some speech issues. PM me if I can help yall out with any info

[Tannerm]

Prayers are with ya Greg. Holler if u need anything.

[Gear_Jammer]

Prayers sent for your brother and whole family. Sorry your brother and family are having to go through all that.

[DriveWayBuilt]

Hope everything turns out well, my cousin and nephew dealt with epilepsy when they were young, both grew out of it.

[davbrucas]

Will say a prayer for your brother. He needs a brain MRI quick to see what's going on. Anti-seizure med (Keppra? Lyrica?, etc.) just blocks the symptoms and doesn't do anything to fix the problem.

FYI...Lyrica isnt routinely used as an antiseizure medication as it doesnt work well. For the most part, it is used for neuropathic pain.

And nothing can fix the problem if the person has epileptic seizures. So, the medications are the best we have. For the most part, they decrease the excitability of neurons in the brain.

And an MRI will just show if there is a structural problem with his brain. It could be perfectly normal and the patient still have seizures. The EEG will measure brain wave patterns and a neurologist will be able to tell if there are epileptiform waves.

I assume the ER doc ruled out there other causes of seizures that are life threatening...

Hope you guys get it figured out Greg.

[Alex]

Can't you be a dick in a more appropriate thread?


Sorry to hear it Greg. I don't pray, but if ya'll need anything, let me know.

Jody is a fucking prick

Sorry to hear Greg I'm praying

[motoman]

FYI...Lyrica isnt routinely used as an antiseizure medication as it doesnt work well. For the most part, it is used for neuropathic pain.

And nothing can fix the problem if the person has epileptic seizures. So, the medications are the best we have. For the most part, they decrease the excitability of neurons in the brain.

And an MRI will just show if there is a structural problem with his brain. It could be perfectly normal and the patient still have seizures. The EEG will measure brain wave patterns and a neurologist will be able to tell if there are epileptiform waves.

I assume the ER doc ruled out there other causes of seizures that are life threatening...

Hope you guys get it figured out Greg.

His first seizure was back in Dec, at that his neurologist did a CT scan and an EEG, which they both came back negative for anything that could cause seizures. After the first one he was put on Ativan for 3 weeks and after the scans came back negative, the doctor told him he could come off of it.

Since his first seizure, he's found a new neurologist (Dr. Modur from UTSW) and has had 3 more seizures, 2 of which happened while he was sleeping. The seizure he had on friday was a grand mal seizure which lasted 4 minutes. Dr. Modur prescribed Keppra for him for the time being. He'll go in for a longer EEG either this week or next week and he's training to get an MRI scheduled for an earlier time.



Dave, how possible is it for someone to have all their test results to come back negative but still be having seizures?