Arthritis Walk 2013

[Leah]

As many of you know, my daughter (8) was diagnosed in July 2012 with Juvenile Rheumatoid Arthritis. At that time, she had significant bone loss in her left hand (2 bones have dissolved and 3 others were partially gone) and was unable to move her wrist much at all. Since the diagnosis, I have been giving her Enbrel injections twice a week, taken her to a chiropractic specialist to massage her joints and have many doctors appointments. She has regained full use of her left wrist and has begun to rebuild the muscles on the left side of her body.

Earlier this month, we went to a checkup at her Rheumatologist's office and she said Aly is responding beautifully to the medication and we can go down to once a week injections. YAY! We go back in March for an MRI and if she has no further bone loss, we can discontinue the injections and she will be considered in remission.

Well, I just joined the Arthritis Walk 2013 in Tarrant County at Tarrant County College on April 27th. It's either a 1 mile or 3 mile walk and you can bring your dogs! We would love for you to join our team (Craig and I, plus our kids and dogs will be walking) or if you aren't the walking type and would still like to help-feel free to donate to the Arthritis Foundation to help in research and development! Thanks for your help guys and please pm me if you have any specific questions! <3 ya!

https://www.kintera.org/faf/donorReg/donorPledge.asp?ievent=1045464&supId=363670514

[downshift_me]

Are y'all doing the 1 or 3 mile? Where do we sign up?

[Leah]

Are y'all doing the 1 or 3 mile? Where do we sign up?

We'll probably just do the 1 mile since my daughter will be there and her knees start hurting pretty quickly. If you follow that link above, there is a link on the right hand side that says 'Join my Team'. Let me know if you have any problems. Thanks, girl!

[downshift_me]

We'll probably just do the 1 mile since my daughter will be there and her knees start hurting pretty quickly. If you follow that link above, there is a link on the right hand side that says 'Join my Team'. Let me know if you have any problems. Thanks, girl!

I registered and added a goal of $250 for Aly. I'll update my registration page when I have more time and pass it around. I have a meeting in March with a pretty big pharmaceutical/vitamin company and I'll hit them up about donating. I had to get on an actual computer as that site was not mobile friendly even when switched to full site viewing.

On a side note.....8?!?! She was a bitty toddler when I first met you.

[idrivea4banger]

Clicked on the link you posted on Facebook and donated. This link in here is different though.

[Leah]

I registered and added a goal of $250 for Aly. I'll update my registration page when I have more time and pass it around. I have a meeting in March with a pretty big pharmaceutical/vitamin company and I'll hit them up about donating. I had to get on an actual computer as that site was not mobile friendly even when switched to full site viewing.

On a side note.....8?!?! She was a bitty toddler when I first met you.

Yeah-8. Time flies! Thanks, Ashley-just FYI, I accidentally signed up for the Dallas one, but I've already emailed them to correct it to the Tarrant County one. Just didn't want you to get confused.

Hugo-they both go back to the same thing. One is her 'Team' page and one is my page as a 'captain'. Thanks, honey!

[idrivea4banger]

Yeah-8. Time flies! Thanks, Ashley-just FYI, I accidentally signed up for the Dallas one, but I've already emailed them to correct it to the Tarrant County one. Just didn't want you to get confused.

Hugo-they both go back to the same thing. One is her 'Team' page and one is my page as a 'captain'. Thanks, honey!

Ok cool just confused me a little bit. Either way it's for a good cause.

[Leah]

Thanks to those who have joined our team or donated!! I am so excited-this is the first walk I've ever done and I can't wait! I think It's going to be fun!! If you don't do it for this gorgeous little girl that deals with pain everyday, do it to keep yourself on Karma's good side.

[Leah]

We're already at 40% of our goal! Please consider either walking or donating to fund research and find a cure!

Thanks!

https://www.kintera.org/faf/donorReg/donorPledge.asp?ievent=1045464&supId=363670514

[Mopar63]

The Tarrant County walk will be bigger and better this year, for the first time we will actually have a kids area with bounce houses, face painting, jugglers and things gear towards the young ones.
I myself have RA and it sucks, badly.

Not to thread hijack- We are looking for volunteers to assist setting up and tearing down after the event, maybe an hour before and an hour after. Moving tables and taking down the fold up canopies.