Announcement

Collapse
No announcement yet.

Daughter's remission status=revoked :(

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Big A
    replied
    Sorry to hear it Leah.

    Leave a comment:


  • JC316
    replied
    Originally posted by Leah View Post
    I will definitely ask her rheum about it!
    I will warn you that specialists have a stick up their ass over it since it's not an "official" treatment yet. It will be starting human trials for crohn's later this year.

    Here is the website for it.

    Leave a comment:


  • Leah
    replied
    Originally posted by JC316 View Post
    Low dose naltrexone. It can be used in conjunction with standard treatments and as a user, I can say that it works. Look into it.
    I will definitely ask her rheum about it!

    Leave a comment:


  • Leah
    replied
    Originally posted by STANGGT40 View Post
    No problem...I hope you make it!
    Originally posted by Cooter View Post
    Donated
    I'm a lot closer now than I was this morning.

    You guys are amazing.

    Leave a comment:


  • JC316
    replied
    Low dose naltrexone. It can be used in conjunction with standard treatments and as a user, I can say that it works. Look into it.

    Leave a comment:


  • Cooter
    replied
    Donated

    Leave a comment:


  • STANGGT40
    replied
    Originally posted by Leah View Post
    Yay-thank you!
    No problem...I hope you make it!

    Leave a comment:


  • Leah
    replied
    Originally posted by STANGGT40 View Post
    That one worked.
    Originally posted by STANGGT40 View Post
    Make sure and change the one on Facebook as well.
    Yay-thank you!

    Leave a comment:


  • STANGGT40
    replied
    Make sure and change the one on Facebook as well.

    Leave a comment:


  • STANGGT40
    replied
    Originally posted by Leah View Post
    Ok, I edited them-see if that one works...
    That one worked.

    Leave a comment:


  • Leah
    replied
    Originally posted by STANGGT40 View Post
    It looks like it's their main page. It says they had a goal of $52,500 and raised $52,562 (or something like that). I don't see anything about Aly...
    Ok, I edited them-see if that one works...

    Leave a comment:


  • STANGGT40
    replied
    Originally posted by Leah View Post
    LMAO-yeah, you do that.

    Thank you so much!!!

    Maren is a little girl we've met and now talk to regularly. She was the 'face of arthritis' for the Tarrant County walk so I'm not sure why it's linking to her.


    It should go directly to us and should be linking to our personal page for "Aly K". ???? Is the link below different for you? If I click on the first one, it shows our page so I'm not sure what you guys are seeing...

    http://www.kintera.org/faf/donorReg/...upid=undefined
    It looks like it's their main page. It says they had a goal of $52,500 and raised $52,562 (or something like that). I don't see anything about Aly...

    Leave a comment:


  • Leah
    replied
    Originally posted by Ted View Post
    I will share this with my supervisor at work.
    LMAO-yeah, you do that.
    Originally posted by STANGGT40 View Post
    I'm in for $100. If I donate through that link, will it link it to you? I can meet you somewhere and give you cash if you prefer.
    Thank you so much!!!
    Originally posted by Grant View Post
    Sorry to hear that. My ex had RA as well as Lupus and know how much work and cost is involved with treating it correctly. Is this a shared pool, or does the money go directly to y'all? The girl I see on the page is Maren.
    Maren is a little girl we've met and now talk to regularly. She was the 'face of arthritis' for the Tarrant County walk so I'm not sure why it's linking to her.


    It should go directly to us and should be linking to our personal page for "Aly K". ???? Is the link below different for you? If I click on the first one, it shows our page so I'm not sure what you guys are seeing...

    Leave a comment:


  • Grant
    replied
    Sorry to hear that. My ex had RA as well as Lupus and know how much work and cost is involved with treating it correctly. Is this a shared pool, or does the money go directly to y'all? The girl I see on the page is Maren.

    Leave a comment:


  • STANGGT40
    replied
    I'm in for $100. If I donate through that link, will it link it to you? I can meet you somewhere and give you cash if you prefer.

    Leave a comment:

Working...
X